So Monday, I was ordered, guided, shoved towards the urgent care clinic again. This time I called ahead. My heart raced (121 beats a minute) and my blood pressure soared (144/90). (They haven't been this high at a doctor's visit in years.) My favorite doctor wasn't there. Instead, a hulking PA looked at my finger.
Interior: Generic strip mall urgent care clinic. Sterile room, flickering florescent lights overhead.
PA: Why do you think it's infected?
A: It was last week, and the red is coming back. It's puffy.
PA: It doesn't look infected.
A: I have to keep a careful eye on it. It was bound to happen.(said in a joking tone.)
PA: Tell me about this lymph-ditis thingy.
A: (internal dialogue: Ohhhhhhhhhhhhh dear lord. He can't pronounce my disorder and called it a thingy...) I have no lymphnodes under my arm or in my groin. My body doesn't pump lymph the way it should, and my right arm is prone to serious infections. (ID: Why am I telling the PA this, instead of demanding to see another doc?)
PA: Pokes my wound. Does it hurt?
A: I can't feel my fingers.
PA: Pokes my wound. Does it hurt?
A: I can't feel my fingers.
PA: Pokes my wound. Does it hurt?
A: I can't feel my fingers.
PA: Why can't you feel your fingers?
A: Side effect from chemo. (ID: did you read my chart?)
COLITIS!?!!?! |
It's so hard when I am sitting in an exam room with an unhelpful professional attempting to communicate my needs and obviously failing. It takes two to tango, and I know I can get prickly, but sometimes, I just need to feel heard.
During my first run with the big C, I, bald and bloated, stood at the meat counter with my number trying to get lunch meat. A lady, I think it was the lady across the counter smiled at me, and she asked, "How're ya feeling?" All I could get out was, "sick and tired." She bit her lip, and she said, "I know, honey, my dad has cancer. It's hard, but I know you can do it." I smiled at her and said, "Thank you. Good luck to your dad."
If she hadn't been fiercely determined to make my day better, bravely outspoken, and stunningly kind, I would never had made that connection. I would never had heard those words, and I needed them. A side note: she also reminded me that as a survivor, to family members and other survivors, I am often a symbol of hope, whether I like it or not, and I had better act like one. It's a role that I am sometimes asked to play, and it's one I will take on.
Anyways, during my second run in with the big C, I would chant to myself, "Be fierce. Be Brave. Be Kind. You can do this." I'd chant it as I sat waiting for tests, as I submitted to the chemo chair, as I walked into the radiation room, as I fought to stay mobile and well, etc. I chanted pretty anytime I was doing something that felt I couldn't do.
This week in that bright exam room with that PA who hadn't read my chart or treated a patient with lymphedema before, I chanted it again.
Be fierce. Be Brave. Be Kind. It reminds me that I can get my needs met without being angry, cruel, or detached. I can get it done my way, all sportsman like.
I would come to you anytime if you called me....especially to deal with incompetent medical personnel. When you are unwell you need help. And I have medical training to combat nincompoops!
ReplyDeleteI'm glad you're tying to work out taking me to my appointment tomorrow. I know it makes D more comfortable. D gets to come to my follow up Friday :)
DeleteWow, I'm so impressed with your patience and your chants.
ReplyDeleteI use the chants to give me patience. Sometimes, I just get so frustrated :( It's so hard to navigate the system without turning into the crazy patient.
Delete