Saturday, December 28, 2013

Three exclamation points

Source unknown.
"Amanda," my very dear college writing teacher said, her tone almost sizzling with exasperation, "You only get three exclamation points for your entire life! Use them sparingly." (I just used hers, not mine.)  I had written something, probably a seminar paper, on some exciting topic, or I should probably say, some topic I found exciting.

Every sentence was an exclamation. Excitement bubbled through me, and I couldn't figure out how to convey the motion, the enjoyment of whatever topic onto paper, without the punctuation mark.

I think she was trying to point out that if everything is an exclamation, then everything has the same weight. It's all the same level of noise. It's like playing forte or wearing bright colors all the time. The absence of joy, excitement, pure beauty makes all those things much sweeter.

In general, I am an excitable person. Anytime I start to go on about some new whatever, D's cousin waits for a comedic pause and jokes,  "Is this your favorite?" Not my "new favorite," but a favorite. Things should be relished, tastes and words rolled on the tongue, sounds repeated, views captured. Life's too short to not press joy out the mundane. I have a lot of favorites.

Everything's kind of become beige this last year. In those frantic moments of realization (you can't keep travelling, you can't move to Austin and take care of duck, you can't go into the mountains much), my favorite things kept getting shifted from daily happenings to unhappenings.

Deep into it, my brain some how turned off its exclamation points. Zest turned into zilch. I didn't notice it at first.



The internal energy, the fire smoldered to ashes, and the heaviness of swelling and grieving grew into the new normal. I feel fire now. Each moment is punctuated with exclamation marks.

That new tabletop game! Favorite! Walking to find Christmas lights! Favorite! Bean soup like my mom's! Favorite! Swimming! Favorite!  D! Favorite! Spontaneous hug from E! Favorite!

As the fluid gets pumped from me, as circulation returns, my brain wakes up, and my soul remembers the electricity of flow. Life is motion. The time for treading water is at an end.

2013 was a hard year. It filled its self with so much waiting and loss. Punctuated with joy, it was just kind enough and just sweet enough to make me grow and learn. My biggest lessons:

  1. I don't get to pick where the wind blows!
  2. I am stronger and more resilient than I know!
  3. I will adapt!

This year, I will take for myself and for D. It will be one of learning to live life without pressure, but with motion and energy. So here's to 2014! Who counts exclamation points, anyways, and who knows what I'll learn? I've got a whole year to figure it out :)

Happy early New Year! How was 2013 for you? Did you learn anything? What do you want to learn next year?
Happy New Year!





Saturday, December 21, 2013

The breathing rooms

So small and yet powerful :)
The machine made it. We've been trained on it, and I have been using it twice a day. The machine is smaller, slicker, and lighter than I expected. The suit that I wear is like Dr. Octo, a bear, and an old school scuba diver got together and had a love child. For an hour twice a day, it whirs and sucks air as if it were the cutest little ewok pretending to be Darth Vader. Oddly hypnotic and soothing, I stare at the ceiling or my eyelids connected to my prosthetic lymph system.

Selfie in suit
It reminds me of other rooms though. Hospital rooms sound like this when you are recovering from surgery, and they have you wired into leg pumps to prevent clots. Nursing homes sound like this when you are hanging out with people hoping to go home. C's room sounded like this the week before she died.

I had taken a job in Portland. My friend called to tell me that C wasn't doing well, and it was near. It was coming. D drove me south right after work on Friday. We drove through the fog, thick and hoary. The passes shot us up and out of it for brief moments. Within seconds, we'd sink back down into blank freezing fog.

The last pass home, we crested the peak. The moon hung bright, so close, I lifted my hand up to touch it, and behind it, around it , the stars spun a radiant dress. Clouds whirled dances above the valley floor. The brightness cast shadows on the ridges that stretched out beyond the valley to the coast. It was a perfect night: cold, clear, and calm.

The next day, I went to see C. Her window looked up the mountain, and the last fall leaves clung stubbornly to the stubby oaks. The room breathed. C's breath came in jagged gasps and whistles. Her hands were cold. Her lips pale purple: not blue, nor pink. Her shrunken frame looked out of place in the bed burdened by her fluid filled gut. Her "pregnancy" with cancer, as she called it, pressed on her lungs. Her fatness was what the doctor's called it when they misdiagnosed her. There was no insurance for the tests.

C, my writing buddy, my soul sister, my purple-shirted friend, always the optimist lay afraid in the breathing room, and I sat with her. I was 23. I knew little of death. I didn't know what to say. I just held her hand, listened to her words, and the oxygen machine whirred. She fell asleep. I kissed her one last time, and I left. C died that week. She was gone before I came back.

In my room, it's hard not to hear the soothing, hypnotic breath of the machine and think of all of those other rooms. This room is my sanctuary. It's the color of a winter run off, cool, green, blue and milky. The breath is breathing my lymph around, bringing relief to my heavy painful limbs and kindling hope that I might get a head of this condition. 

Maybe when I've been hooked up a while, the old memories will fade, and I will remember C just for her laugh, her poetry, and her image as God's jester dressed up for the feast. Right now, the machine reminds me of her at the end, her waiting to go, her being scared and, in an odd way, relieved. It's so strange, but instead of stress and fear, I feel nothing, but a sad and quiet peace. It's a good place to spend a while each day, alone, peaceful, and waiting.

This last Sunday, D drove us back from a quick visit to Portland. The fog hung thick, almost an eerie pale green.  As we wound up the mountain highway, the road punched us through the fog. Ahead, just above the next peak, framed by billowy brilliant night clouds, a single shooting star slipped from space. I fancy it was C saying, "Merry Christmas. Happy Belated Hanukkah. Happy Kwanzaa. Joyful Solstice. Happy New Year. God loves my laugh. Hugs and kisses."

Saturday, December 14, 2013

R and R

Bed Hair 1
Last night, I slept for 10 and a half hours: 9, the night before that. Vacation has settled around me, and I am content with my days. It's so crazy to wake up when I want, go to bed when I want, eat when I want, drink when I want, etc. How did I ever get bored during summer vacation?

A nagging voice in my head keeps telling me to get up and be PRODUCTIVE. You only get so many days, you know. There's a toilet to scrub, food to make, and drawers and cupboards to organize.  The list of things I should do is endless. The list of things I want to do is endless too: write a novel (bodice ripper or fantasy?), knit/crochet a sweater, make Christmas presents, read books, work out and on and on and on.

Mostly, I am eating too much blissful food, sleeping, cuddling with my dogs, playing video games, fostering a third dog, hanging out with D and E, and baking.

Bed hair 2
My OT told me to just enjoy it. She said, "Do what you want to do. Don't keep busy. Don't feel like you have to be PRODUCTIVE."  I needed to hear that, as I had felt guilty for my week of relaxing that I had already taken.

At the beginning of the big C, 8.75 years ago, D and I moved to Texas. We had some sort of party and a very sweet friend of the family told me about his relative who beat cancer. He told me about how each day the relative woke up and lived it like it would be the last. The relative was positive and inspired people. The relative spent all day, go, go, going. "That's what you have to do to stay here," he said. In these words, I heard his deep, abiding love for this person and his deep, abiding fear.

I feel this pressure in my chest to take each moment and make it meaningful. It spurs me on to make a mark and live life fully. Life is a gift, and it shouldn't be wasted. I think the worrying symptoms I was feeling two weeks ago were exhaustion. What if part of living is learning that resting with your family in your home by the Christmas tree is just as important as the flurry of activity?  What if it's the breath in, and it's just as important as the exhale?

Here's to this holiday season, and here's to vacation. The darkest of winter is the time of rebirth. 


"Farewell the moon, welcome the sun." Johnny Cunningham, "A Winter's Talisman.


Night time stroll during the first snow